Resource Hub

Reports, factsheets, guides, and publications to help you on your journey to transform long-term care

Care Crisis Resources

  • Caregiving In The U.S.

    This AARP study presents a portrait of unpaid family caregivers today.

  • Direct Care Workers In The United States: Key Facts 2023

    This PHI study provides an annual snapshot of the direct care workforce, including its demographics, occupational roles, job quality challenges, and projected job openings.

  • Workforce Data Center

    This PHI study presents wages to employment statistics, across states and nationwide, find the latest data on the direct care workforce.

  • Valuing The Invaluable 2023 Update: Strengthening Supports For Family Caregivers

    This AARP report pulls from multiple sources to profile who family caregivers are and the challenges they face and includes several first-person accounts of the experience.

  • Dying Broke

    Articles in this series by New York Times and KFF examine how the immense financial costs of long-term care drain older Americans and their families.

  • Who Uses Medicaid Long-Term Services and Supports?

    This KFF report explains that nearly 6 million people receive Medicaid long-term services and supports (LTSS) for assistance with activities of daily living.

Planful System Resources

  • Centering Equity in Long-Term Care: A Primer

    This MIT CoLab report explores financing models that create a more equitable system like social insurance and universal coverage.

  • Long-Term Care Financing Models: Case Studies and Lessons from the U.S.

    This MIT CoLab report examines case studies of long-term care financing programs beyond Medicaid that have been utilized in the United States.

  • Centering Equity in Long-Term Care: Lessons from Germany, Japan, and Sweden

    This MIT CoLab eport examines three international long-term care financing programs and provides lessons for policymakers to consider.

  • Navigating Tradeoffs in Building an Equitable Long-Term Care Social Insurance Program

    This MIT CoLab report examines how the American long-term care system exacerbates existing inequities between many groups, including direct care workers, older adults, people with disabilities, and family caregivers.

  • Financing Long-Term Services and Supports: A New Chapter of State-Based Solutions

    This MIT CoLab report explores the progress that four states (California, Massachusetts, Minnesota, and Washington) have made in building new long-term care social insurance programs.

  • Why Social Insurance Factsheet

    This MIT CoLab report examines how the the American long-term care system is not up to the challenge of meeting our needs.

  • The American Prospect: Caregiving in Crisis

    This Caring Across Generations report details how hard public policy makes it to create and maintain a family, and provides ideas about how we can change it so families thrive.

  • Designing Universal Long-Term Care Programs: Lessons from Germany and Other Countries

    This NASI report examines state governments in the U.S. embark on the design and implementation of universal LTC programs, much can be learned from the experience of existing programs in Europe and Asia.

  • Learning from New State Initiatives in Financing Long-Term Services and Supports

    This UMass Boston report addresses how to pay for long-term services and supports (LTSS), if and when these needs arise.

  • Paying for LTSS: How Can States Build New Financing Programs?

    This HCBS Conference report addresses the need for the need for LTSS reform.

  • How Can California Support Undocumented Home Care Workers?

    This MIT CoLab brief explores actions that California can take to invest in and support undocumented home care workers.

Worker-Owned Cooperatives Resources

  • Growing And Supporting LTC Worker Co-Ops

    This MIT CoLab report serves as a primer on co-op development as a key strategy to mitigate inequities that exist within the growing LTSS industry.

  • 2022 Home Care Cooperative Benchmarking Report

    ICA Group explains, in its fifth year, the 2022 Home Care Cooperative Benchmarking Survey captured data on the state of the national home care cooperative sector.

  • Home Care State Market Assessments and State Co-Ops

    This ICA Group resource presents in-depth home care cooperative market analysis in a handful of states and territories.

Private Equity's Impact on Care

  • The Growth of Private Equity Ownership in the Home Healthcare Market

    This AAI and AFREF report examines the role of private equity in home healthcare markets.

  • Private Equity at Home

    The Private Equity Stakeholder Project reports as the nation’s population ages, many elderly Americans have decided to receive assisted living or end of life services at home rather than in a facility, such as a nursing home.

  • Profiting at the Expense of Seniors: The Financialization of Home Health Care

    This Center for Economic and Policy Research report brings together a full analysis of the CMS policies that have led to the financialization of home health.

Mel King Community Fellowship Resources

  • Mel King Community Fellowship: Leaders in NY Government Report

    This MIT CoLab report summarizes the activities and recommendations of the Mel King Community Fellows (MKCF): Leaders in NY Government Program.

  • 5-Year Report: Transformation in Moments of Disruptive Change

    This MIT CoLab report address how access to capital remains a critical challenge in marginalized communities.

  • MIT CoLab Fellows focus on building community wealth for LTC workers

    This Kresge Foundation article explains how expanding access to long-term services and supports requires coalitions and resources. Worker co-ops offer a solution to workforce shortages in the sector, care and job quality.

  • Mel King Community Fellowship Program upholds the late civil rights activist’s legacy

    MIT News reports how The Mel King Community Fellowship Program at MIT was founded by its namesake in 1970 and continues connecting changemakers across a range of social justice issues.

Presentations and Webinars

  • Transforming Long-Term Care

    This May 2024 webinar recording includes an overview of the need for the long-term care resource hub and how different stakeholders can use the resource hub.

  • State-Based Campaigns for Alternative Financing in LTSS

    This April 2023 presentation recording includes an overview of lessons and progress made in LTSS reform in California, Washington, Hawaii, and Maine.

  • LTSS Policy Fireside Chat

    This May 2022 Mel King Community Fellow Fireside Chat includes a discussion of key LTSS policy considerations with national experts.

  • Cooperative & Finance Fireside Chat

    This May 2022 Mel King Community Fellow Fireside chat includes a discussion with key leaders on cooperative development and non-extractive financing in long-term care.